General Resources
This is an evidence-based, patient- and provider-directed resource for cancer, including many that can result in need for a temporary or permanent ostomy.
This is a patient-directed resources for pre- and post-operative support.
https://www.facs.org/education/patient-education/skills-programs/ostomy-program
This inflammatory bowel disease (IBD) specific organization publishes digital and printed content for patients and providers alike.
They provide fundraising, research, logistic support and counseling resources in addition to education conferences.
(An ostomate is a person with an ostomy.)
This organization provides financial and supply resources to under-resourced and under-served people with ostomies around the world.
A non-profit organization that provides financial and advocacy assistance to people with serious/chronic illnesses, including many that contribute to the need for an ostomy.
This is an excellent evidence-based patient-directed resource for all ostomates. They have companion magazines and additional print resources.
There are 3 main ostomy supply manufacturers in the U.S. They each have patient support resources and their own niche submarkets to meet specific patient needs. They are in alphabetical order:
Coloplast: https://www.coloplast.us/
Convatec: https://www.convatec.com/
Hollister: https://www.hollister.com/en
This internationally recognized center provided me the opportunity to perform my ostomy clinical training under the incredible preceptorship of the renown Janice Colwell.
Janice and her colleagues have also provided tremendous care to me since 2011.
https://www.uchicagomedicine.org/conditions-services/colon-rectal-surgery/ostomy
This is the professional society for ostomy nurses. The link explains more about Ostomy Nursing.
The organization has many roles, including:
- Serving as the credentialing body for ostomy certification programs.
- Providing evidence based continuing education opportunities for ostomy nurses
I was fortunate to be awarded a scholarship to attend Emory University’s graduate coursework in Ostomy Care through this organization.
A resource for assessment and treatment of the skin around the ostomy that is at risk for many complications.
This is a two part tool: One tool is patient-directed and a separate tool is provider-directed.
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